Service Coordination Committee

Responsible for Service Coordination Forum : held annually in the spring

Meetings: As Necessary CHECK CALENDAR & BELOW

Carol Lincoln, Chair, Director of Medcaid Service Coordination, UCP NYC,, 718-859-5420 x 225

FSSAC Meeting Minutes – 5/17/17

  1. Announcements


Margaret Puddington explained that the Manhattan Family Support Services Advisory Council (MFSSAC) is a subcommittee of the Manhattan Developmental Disabilities (DD) Council.  The DD Council is made up of providers, government representatives, family members, and self-advocates.  The mission of the DD Council is to improve the lives of people with DD and their families.


The MFSSAC is made up of family members and self-advocates.  The mission of the MFSSAC is to inform families about new services and changes affecting services and to get input from families about their ideas regarding everything that affects the range of DD services.  We welcome new Manhattan families—of all ages and with all types of developmental disabilities.  We generally have a speaker at every meeting on a relevant topic relevant.  Please join us.


Families are also welcome at the DD Council and all its subcommittees.  The Family Support Services Committee discusses issues affecting services for families whose children are at home with them.  The Transition Committee discusses issues relating to the transition of students from school at age 21 to adult day services.  The Legislative Committee discusses critical advocacy issues that affect services for people with DD.  (See item 2 below).  The DD Council discusses current developments and challenges in the field, with reports from government representatives as well as the subcommittees.  The DD Council also has speakers on topics of interest to the DD community.



Family Support Services Committee
Tuesday, June 13, 2017, 10:00 am – noon
Sinergia, 2082 Lexington Ave., 4th floor
Information:  Yesenia Estrella (212) 643-2840 x 349;


Transition Committee
Wednesday, June 14, 2017, 9:30 am – noon
AHRC, 83 Maiden Lane, 11th floor Board Room
Information: Kathy Kelly (212) 780-2724;


Legislative Committee
Next meeting to be announced.
Information: Jim Malley (212) 928-5810 x 101;


DD Council
Thursday, June 8, 2017, at 9:30 am – noon
SNACK, 316 East 53rd Street
Information: Marco Damiani (212) 947-5770 x 456;


Next Manhattan Family Support Services Advisory Council
Tuesday, June 6, 2017, 5:30-7:30 pm
Topic: Medications That Can Improve Challenging Behaviors, by Dr. Peter Della Bella, psychiatrist
Birch Family Services, 104 West 29th Street (between 6th and 7th Aves.), 2nd floor training room
Information: Margaret Puddington (212) 799-2042


  1. Important Advocacy Issues – Margaret Puddington

Unlike school, which is an entitlement that is guaranteed to children, services for people with DD are not an entitlement.  Even if you qualify for DD services, there is no guarantee you will get them.  If there is a shortage of services or a shortage of funds, families may have trouble getting needed or desired services.

It is important for families to understand a little about the funding for services for people with DD and about legislation that could impact the funding.  Over the past decades DD services in New York State have been relatively robust.  Part of the reason is that this field has always had strong advocacy not only from providers and the state but also from family members.  We families have been effective advocates for securing new funding and holding on to existing funding.  Families have gotten new services developed and prevented budget cuts.  We don’t always win, especially in the last decade, but we are successful a good deal of the time.

One critical advocacy issue is to raise the salaries of direct service professionals (DSPs), the people who provide hands-on care to our children.  The field is experiencing real difficulties in recruiting and retaining DSPs because of the low salaries for this important work.  We just recently achieved some success is gaining a small increase in DSP salaries, but it is not nearly enough to make a significant difference in hiring and keeping staff.  It is essential that we continue advocating for higher salaries in the coming years.

The other extremely critical issue we are facing now has to do with Medicaid funding.  First, some background information:

New York State has a comprehensive menu of services for people with DD: family support services and respite services, which you’ll hear about today, as well as residential services and adult day services of various types.  The services are delivered through the New York State Office for People with Developmental Disabilities.  Some services are paid for exclusively with state dollars—many family support services are paid that way.  Other services are paid for by Medicaid waiver dollars, a mix of federal and state dollars.  Medicaid pays for over 90% of services for people with DD.

Right now an effort is underway by President Trump and Paul Ryan, Speaker of the US House of Representatives, to do away with Obamacare and replace it with a new version of health care.  A big piece of the restructuring is Medicaid.  Medicaid is very expensive, and the new administration wants to cut costs by making it a block grant to states or a per-capita grant.  Regardless of the details, what it means is that either way states would get a fixed amount of money and no more.  It is basically a way to cut Medicaid funds by cutting the amount that states would receive.  If there were to be a big cut to Medicaid, services for our children would be limited; some services could be eliminated altogether.  This is a huge threat to our children.

Why is this important?   Because all of us need DD services.  All of us are in that same boat.  If we want that boat to float, we must take responsibility to advocate.  People who attend MFSSAC meetings will  be able to stay informed of the most critical advocacy issues via e-mail alerts to make phone calls or send e-mails or come to rallys.  Please respond to those alerts.  It’s up to us to preserve what we have.  Nobody will do it for us.  If we don’t step up, nobody will.

Elly Rufer provided the first such alert:  NYC Fair, a family advocacy group, is holding a meeting with Jason Helgerson, Monday, June 12, 6-8 pm, in Manhattan.  Helgerson, is the NYS Medicaid Director.  This is a huge opportunity that such a key person is coming to meet with families. It’s important to have a huge turnout for this meeting, to impress Helgerson with the numbers of families who care so deeply about preserving Medicaid funding for our children’s services.  Please see the attached flier for details about the meeting.

  1. Speaker: Janet Davis, OPWDD: An Overview of Services for Families Whose Children Live at Home

Janet Davis is the Family Support Services Liaison for Manhattan OPWDD.  Janet explained that the family support services program started in 1984.  At that time Manhattan had 20 programs; now there are over 100 programs.  Family support services are a variety of services to support families in keeping their child at home.

To receive OPWDD services, the individual must be OPWDD-eligible:

  • The individual must have DD (including intellectual disability, neurological impairment, cerebral palsy, autism, epilepsy, traumatic brain injury, and similar conditions) AND
  • The onset of the disability occurred before age 22 AND
  • The disability must be likely to continue indefinitely or be lifelong.

To document the disability, the person must submit a psychological evaluation, a psychosocial evaluation, and a medical evaluation.  School psychologicals do not usually contain the needed information.

The first step for people who need services but are new to OPWDD is to call the Front Door.  The Front Door will determine the person’s eligibility, assess what services are needed, and authorize needed services.  The Manhattan Front Door can be reached at 646-766-3220.

Janet recommended that while trying to access needed services, families get a small notebook and keep a record of their calls: whom did you speak to, what was the subject of the call/meeting, what did they say.  This will help families to keep track of their contacts because over time, conversations, names, etc., can be forgotten.

Janet discussed the Manhattan Family Support Services Directory.  This info-filled directory can be found on the website of the Manhattan DD Council:  On that site, press Menu, then Resources, then FSS Directory.  Janet pointed out that the Directory contains a useful list of acronyms, and a listing of general resources.  She explained that the Directory is divided by types of program (for example: Advocacy, Recreation, Respite), with definitions of each type of program.  All the programs provided through OPWDD are free.  Other programs are also included in the Directory, and some of those have fees. Janet explained the different types of programs and gave examples of each. She encouraged the families to go home and explore the Directory for what they need.  She especially suggested that families read about the “population served” and “description of services” to see which are appropriate for their child.  Each program is different: some serve adults, some serve children, some serve people who are independent, some serve people with behavioral challenges.

Janet can be reached at 646-766-3330 or

Please see the attachments for additional announcements. MFSSAC handouts May 2017

FSSAC Meeting Minutes – 4/6/17

  1. Announcements

Family Support Services Committee
Tuesday, April 11, 2017, 10:00 am – noon
Adapt Community Network (formerly UCP/NYC), 80 Maiden Lane, 4th floor
Information: Yesenia Estrella (212) 643-2840 x 349;

Transition Committee
Wednesday, April 19, 2017, 9:30 am – noon
AHRC, 83 Maiden Lane, 11th floor Board Room
Information: Kathy Kelly (212) 780-2724;

Legislative Committee
Next meeting to be announced.
Information: Jim Malley (212) 928-5810 x 101;

DD Council
Thursday, May 11, 2017, at 9:30 am – noon
CP of NYS, 330 West 34th Street, 15th floor
Information: Marco Damiani (212) 947-5770 x 456;

Elly Rufer announced the upcoming meeting of the 5-Borough Council, April 19, 10:00 am, 25 Beaver Street and video sites in the other 4 boroughs. All are welcome.


  1. Report on NYS Budget, Medicaid Restructuring, and Advocacy Activities – Margaret Puddington

Because the New York State budget was not passed on time by April 1, the Legislature had to pass a budget extender, to extend the current budget through May 31 by which time the federal budget will have come out. Governor Cuomo wants to know the extent of any federal cuts so that he can accommodate them in the NYS budget. Subsequently, the NYS budget was passed.

The main issue for the I/DD community was to raise the salaries of direct support professionals (DSPs).   About 500 people attended the #bFair2DirectCare rally in Albany March 28 to add $45 million to the NYS budget to raise salaries of DSPs. The Governor addressed the group and promised to implement a 3.25% increase to begin on January 1, 2018, and another 3.25% increase on April 1, 2018. This is in addition to the already enacted minimum wage increases for all lower paid staff.  The Governor said that his proposal would cost $55 million, which is $10 million more than we had asked for.  The additional money would be used to fund similar increases for DSPs working under the auspices of the Office of Mental Health and the Office of Alcoholism and Substance Abuse Services. Subsequently, these increases were included in the enacted NYS budget—a tremendous accomplishment.

To get these raises, the #bFair2DirectCare coalition waged a year-long campaign with rallies, tweets, emails, press conferences, even a billboard in Times Square. Success came because we united around a state-wide coalition, a catchy phrase, multiple events, news stories sustained over more than 12 months, and the tireless efforts of advocates from all over the state.

The other priority issue was pay raises for teachers, teacher assistants, and clinicians in both 4410 preschools and 853 school-age programs. In order to stop the massive teacher turnover, we advocated for funding to increase teacher salaries in both 4410s and 853s. We advocated for $18 million to begin to reduce the huge gap between our teachers’ salaries and salaries of public school teachers. We also advocated for a 4% tuition increase for 4410s and 853s. In the final budget we did not get any money to reduce the gap. But the State Education Department has requested the 4% tuition increases, which will have to be approved by the Governor and the Division of the Budget. Advocacy will continue about this.


Medicaid Restructuring

The first attempt to repeal ObamaCare (ACA) was not successful: the recently proposed American Health Care Act was not brought to a vote and got shelved. However, Medicaid “reform” is certain to be resurrected in one or another guise. Whether through block grants or per capita caps, the overriding goal of Medicaid restructuring is to reduce costs. The recent proposal would have cut Medicaid by $377 billion (not including the loss of state dollars) over 10 years.

Currently Medicaid is a needs-based cost-sharing arrangement between the federal and state governments. But under block grants or per capita caps, each state would get a fixed amount of money and would have discretion over how to spend it.

To compensate for reduced funding, states would be forced to adopt some or all of these strategies: limiting eligibility, limiting or eliminating services and supports, imposing costs on Medicaid recipients, and reducing payments to Medicaid providers.

All Medicaid recipients could be hurt, but people with developmental disabilities (DD) are at extraordinary risk for the following reasons: DD services are lifelong services; there is a very extensive range of services, including residential and day; staffing in DD services is intensive. DD services are distinct because of the unique, and costly, needs of people with DD. Because our services are so costly, we have a target on our back.

DD services are completely reliant on Medicaid funding unlike e.g., hospitals, which only get 40% of their revenue from government. DD providers can’t charge more like McDonalds or expand revenue by using other insurance like hospitals. The only option for DD providers would be to reduce staffing and services, which would put people with DD at risk. We’d have to compete with all the other Medicaid populations for funding. The results are clear: we’d be decimated.

Medicaid cuts are an enormous threat to people with disabilities. Stay tuned for further developments. Please respond to alerts. If we don’t do it, no one will.

Meanwhile Manhattan and other advocates are planning visits to members of Congress to educate them about the dangerous impact of such cuts on people with I/DD.

About 200 people attended the Manhattan Legislative Breakfast March 3. Our main topics were raising salaries for DSPs and the dangers of Medicaid block grants or per capita caps. On DSP wages, speakers were a DSP and Susan Constantino, CEO, CP of NYS; on Medicaid cuts, Marco Damiani, chair of the Manhattan DD Council, gave an overview and 11 speakers—parents and a self-advocate—made the potential impact real. NYS Senator Brad Hoylman also addressed the audience. Manhattan legislators are very sympathetic.



  1. Report on Statewide Family Support Services Committee Meeting, March 29, 2017– Margaret Puddington


Commissioner’s update

Helene de Santo, Acting Executive Deputy, OPWDD, provided an update on the NYS budget, which included wage increases for DSPs (see above) and:

  • $120 million, state and federal shares, annualized, for new development of all types of services – residential, community hab, respite, etc.
  • Multiyear housing strategy (details below)
  • $15 million in capital funding for affordable housing
  • Access to money for supportive housing
  • Language regarding the transition to managed care and access to start-up funding
  • Guarantee that any savings realized by OPWDD will be returned to OPWDD
  • Language establishing Care Coordination Organizations (CCOs) in January 2018 to provide conflict-free case management. DD providers will come together to establish CCOs, bringing their MSCs as employees of the CCO. CCOs will operate under the framework of health homes, a model that satisfies the conflict of interest issue. People with I/DD will be one of the qualifying populations for health homes. A request for applications will be out soon.
  • Crisis funding for START in the downstate region. (See START presentation below.)
  • Funding to meet the new minimum wage


All of these items were included in the enacted budget.


Nurse Practice Act – Susan Prendergast: Traditionally, medications could only be administered by DSPs who were directly supervised by nurses in certified settings such as IRAs or ICFs. This act permits DSPs to administer medications and do other medical tasks in uncertified settings (setting not certified by OPWDD, such as individually leased apartments). This is important because some people could live more independently except that they need assistance with their medications. If staff are not permitted to provide that assistance, the individuals must live in a more restrictive setting such as an IRA. Ten providers have been approved under the Nurse Practice Act, but it is not clear that any providers have implemented it. The process is onerous and requires actual nurse oversight, so that providers must hire a nurse to make visits to the site. This is an unfunded mandate.

FSSACs’ Oversight of Waiver Respite – Tamika Black. Some DDROs have chosen to discontinue their own oversight of waiver respite programs. It is no longer possible to measure how many people are using a particular program or how many hours of service were provided because of Front Door access, where people enroll in a program one at a time. Programs used to be funded through a request for proposal process, where the number of people to be served for a certain number of hours were stipulated. That is no longer true. Additionally, the units of service (hours) are bundled for all of an agency’s waiver respite programs, so that you have a grand total of respite hours for in-home respite, recreation, overnight respite, etc., and cannot tell how many hours an individual program is supposed to provide. Thus, there is no way to measure an agency’s attainment for a particular program. Moreover, OPWDD has transferred oversight responsibility for waiver respite programs to the Division of Quality Improvement (DQI). Some DDROs, such as in NYC, are no longer monitoring waiver respite programs. Our FSS Advisory Councils are objecting to being cut out of our previous oversight roles.


OPWDD had agreed that the FSSACs could go on joint oversight visits with DQI. Joint visits were to be piloted in January, but Tamika Black explained that the pilot was delayed because there is a new audit tool, based on person-centered principles, which is unfamiliar to surveyors, who are not yet comfortable with it. Tamika predicts that by August, they will be ready to pilot the joint visits. The families expressed concern that it has been quite a long time since visits to waiver respites were conducted, which means oversight is lacking, and we emphasized that our councils want to be included (with the exception of one or two who did not previously oversee waiver respite programs).


OPWDD Communications: “Join the Conversation” – Cynthia Markowitz

OPWDD wants to reach out to more families and individuals as well as MSCs and providers to share information regarding changes in the system and new programs. In the future, there will also be a feedback loop. There will soon be a way to sign-up on the web. More information to come.


FSS Booklet and FSS Guidance Documents

These are in the process of being updated. Kathy Nowak is involved in the update of the FSS Booklet.


Respite: New Rates – Kate Marley

Rate rationalization wasn’t working, where all providers in the same region got the same rate. Providers were in jeopardy of closing programs because they were losing too much money. Now OPWDD is proposing different rates for 5 categories of waiver respite: site-based, in-home, camp, recreation, intensive behavior. If CMS approves OPWDD’s proposed rates, they will be implemented July 1.


OPWDD’s 3-Year Housing Strategy – Kevin Valenchis

A total of 6,800 people need residential services over the next 3 years. Of these 6,300 live at home and 500 live in skilled nursing facilities, developmental centers, or state-operated ICFs.


Of the 6,300 at home, 4,900 need certified settings such as IRAs, and 1,400 need uncertified settings such as rental subsidies.


Each year 1,300 people vacate their residential placements due to deaths or moving out of state or other reasons. Thus over 3 years, there would be opportunities for 3,900 people (1300 x 3) to move in vacancies in existing residences (backfills). The 3,900 includes 150 uncertified vacancies.


Deduct 3,900 backfills from the total 6,800 in need. That leaves 2,900 to be placed over 3 years in NEWLY developed residences, of which 1,300 will be certified and 1,600 uncertified rental subsidies.


This is about 1,040 NEW opportunities this year (460 certified; 580 uncertified). Cost of the 1,040 is $48 million, annualized, coming out of the $120 million to fund all new services.


To qualify for the new opportunities, people at home must meet all 3 of these criteria: caregiver over age 70; caregiver challenges in meeting needs of person; ISPM score of the individual greater than 1 (one), the most independent level.


OPWDD bases these figures on assumptions of need from various lists: Residential Registration List, Certified Residential Opportunities list, Skilled Nursing Facilities eligibility, transitions from developmental centers.

Current unmet needs: Round robin of different regions

Common themes: Can’t find staff for programs, services, or self-direction. Can’t find ABA providers. Need more respite and afterschool; programs for people with challenging behaviors; overnight respite for a week or so in crisis; emergency placement options; services for those with both I/DD and mental health needs; transportation to FSS programs; respite for people who use wheelchairs.

Suggestion: Satisfaction surveys sent to users of family support services could be sent via e-mail.

  1. Speakers: Sharon Cyrus, SUS, and Dr. Roslyn Burton-Robertson, YAI, on the NYSTART program in NYC  START – ppt , START brochure,

NYSTART offers crisis prevention and response services to people age 6 and up who are OPWDD eligible and have complex behavioral needs and a mental health diagnosis or ASD with emotional and behavioral challenges.


Based on a model used in 12 other states, NYSTART provides training, consultation, cross-systems partnership, short-term therapeutic in-home supports, short-term therapeutic emergency and planned respite, crisis plan development, and a 24-hour crisis line for people already enrolled in NYSTART. NYSTART gets everyone involved with the person, including psychiatrists and ER, to communicate with each other and to be familiar with the crisis plan. They look at medications, sensory issues, and environmental issues. Services are generally from 12 to 18 months in duration, but once discharged a person can always re-enroll. START has proven to significantly reduce psychiatric hospitalizations.


NYSTART doesn’t replace anything in the system, but fills gaps, acting as consultants.


If a person is not eligible for NYSTART, NYSTART will make referrals elsewhere.

Please see the attachments for more information. Contact numbers:

Bronx, Manhattan, Queens: 212-274-6300

Brooklyn, Staten Island: 646-565-5890


DD Council Minutes – 5/11/17

  1. Introductions were completed.


  1. Minutes from the last meeting were approved; if you would like to refer to past minutes, they are always available on the DD Council website: (


III.       Announcements : Flyers Distributed



Program vacancy list is attached; if anyone is interested in summer camp programs, you will need to apply now.


The Sixth Annual Conference, “Visionary Leadership,” will be held June 6-8. See attached for details. For information, professionals can go to



Current program openings are attached; call 718-728-8476 for more information.

QSAC also offers a Seniors with Autism and Aging Caregivers Project, for people on the autism spectrum who are 55 or older, and primary caregivers who are 60 and over. For referrals or to join the resource network, call Patrick Paglen at 718-728-8476, ext. 1242.


New York Deaf and Blind Collaborative

Children and youth who are deaf and blind are eligible for assistance with referrals, instructional practice, family support and training, transition planning, and more. See attached for details, or go to, or call 718-997-4856.



See attached for funds for transportation reimbursement for up to $600 per year for Manhattan families; for more information, call Kary Paulino at 212-928-5810, ext. 178.


ADAPT Community Network – formerly UCP of New York City

Information for the upcoming free workshop on 6/16 on parenting children with autism spectrum disorder is attached. There is also a workshop on 5/25 on siblings of people on the autism spectrum. Call 718-436-7979 ext. 704, or email

See attached for services and supports; there is immediate availability for Community Habilitation (all boroughs but Queens), openings in work readiness in Brooklyn and Staten Island, and funds for family reimbursement. For more information, email or go to

New York Lawyers for the Public Interest (NYLPI)

People with housing issues, including accommodation (physical), discrimination, or exclusion (landlord won’t take vouchers or problems with Section 8) should call 212-244-4664, and if NYPLI can’t assist, they can refer the person to someone who can help them.


See attached for information on the NYS Region 1 Parent Training and Information Center Collaborative, Family Support Case Management, and free evaluations for people who live in Manhattan and are seeking OPWDD eligibility. Evaluations can be conducted in the home and on the weekends.


NYC FAIR – Family Advocacy Information Resource

There will be a Town Hall Meeting with Jason Helgerson, NYS Medicaid Director on June 12, from 6-8pm. There will be a discussion of how the Medicaid Transformation impacts people with I/DD. See attached for more details and registration information, or go to



Information is attached for service vacancies, including family reimbursement and free evals in Manhattan. Also see attached for a Parents With Special Needs program, Crisis Intervention, and emergency respite funds.

For more information about these programs, or the Autism Family Support Series, Autism parent support group, an Adult Yoga group, psychological evaluations, and all other services, call YAI Link at 212-273-6182, email or go to


Presentation: NYC Kids Project: Teaching Children Inclusion and Respect for All

This program goes into schools to teach children without disabilities, preschool to high school, sensitivity, empathy, and connection to children with disabilities of all types. They also go into special education settings including District 75. Using puppets and theater with facilitated dialogue, the program addresses social exclusion, bullying, stereotypes, and diversity. Formerly funded by OPWDD, the program now raises funds privately to continue bringing their message to school children. For more information, please see the attachment and visit their website at Contact them at 646-766-3456 or e-mail at


  1. State News – Ellen Bleckman
  • Acting Commissioner Delaney sent a letter to the field regarding the MSC transition to Care Coordination Organizations (CCOs) to reassure MSCs that OPWDD wants to preserve jobs as MSCs get picked up by CCOs. Anticipated start date for CCOs is January 1. Marco Damiani pointed out that more communication and clarification are needed for MSCs and families.
  • Respite Rates: OPWDD held two webexes this week to present the changes to agencies and respond to their questions. The powerpoint may be found on the OPWDD website:


  1. City News – Sandra Piggee
  • Public Health Solutions’ contracts will be managed by the Department. The process should be completed by December 1.
  • The Local Government Plan was completed.
  • Money for the Family Support Services Fair runs on the fiscal year, not the annual year.


  1. IAC/Federation – Jim Malley, Suzanne Timmerhans

IAC: Suzanne Timmerhans

  • Chris Suriano, the new Deputy Commissioner for Special Education of NYS SED, has been working cooperatively with the special education provider associations.
  • SED has requested the same increases that IAC has been advocating, but the request must be approved by the Governor and the NYS Division of the Budget.
  • IAC, together with COPA, is rolling out an advocacy campaign similar to the #bFair2DirectCare effort, to win raises for 4410 and 853 teachers and assistant teachers.
  • IAC has concerns about the new auditing protocol. There has been an increase in 45-day and 60-day letters downstate, most likely attributable to the difficulties providers are experiencing in recruiting and retaining direct support professionals.
  • OPWDD will soon issue a letter of intent for agencies to act as temporary operators in cases where providers cannot continue on their own.
  • IAC’s Annual Conference will be held on June 8 and 9 and will feature workshops on schools, housing, and the future of Medicaid.


Federation: Jim Malley

Representatives from the borough councils and FSSACs met to complete the Local Government Plan. The top priority has been changed to raising DSP salaries. The second priority is residential development.


VII. Committee Reports

Family Support Services: Yesenia Estrella reported that at the May 9 meeting, there was a presentation from NYC Emergency Management. The committee is searching for a more central and less expensive location for the Fair. The site must be large enough to accommodate 500 people, 70 vendor tables, and at least 3 break-out rooms If you have any suggestions, please contact Wendy De Leon at In case we do not find a more appropriate site, we placed a hold on last year’s space at New York Academy of Medicine for December 14. Next meeting: Tuesday, June 13, 2017, 10:00 am – noon, Sinergia, 2082 Lexington Avenue, 4th floor. Information: Yesenia Estrella (212) 643-2840 x 349;


Legislative: Jim Malley reported that a small group, including constituents, met with staff of Congressman Nadler and Congressman Espaillat to educate them on Medicaid issues unique to people with developmental disabilities. Although people with developmental disabilities are a small part of the Medicaid population, they utilize a considerable portion of the Medicaid budget. We recognize, therefore, that we are a target for Medicaid cuts. We would be in competition for funding with large hospitals, which have impressive resources that are lacking in the DD field. The meetings were helpful in illuminating issues with which staff were not familiar.


Of concern, three proposed laws:

  • To change the penalty for not reporting allegations of abuse and neglect to the Justice Center from misdemeanor to felony.
  • To mandate cameras in the common areas of residences.
  • To require psychological testing for DSPs.


Next meeting to be announced. Information: Jim Malley (212) 928-5810 x 101;


Transition: Kathy Kelly reported that at the May 10 meeting, CAS implementation was reviewed. CAS administration is separate from the Front Door and does not delay the Front Door process.


There are about 96 District 75 June graduates and one or two from other schools. All but 10 have eligibility, and those are in process. Most have MSC and are selecting providers. One student with significant behaviors has not yet found services. Next meeting: Wednesday, June 14, 2017, 9:30 am – noon, AHRC, 83 Maiden Lane, 11th floor. Information: Kathy Kelly (212) 780-2724;


Manhattan Family Support Services Advisory Council: Margaret Puddington announced two upcoming FSSAC meetings. (1) An overview of services for families raising their child at home, for new families, May 16, 2017, 10:30 am – 12:30 pm, at Sinergia, 2082 Lexington Avenue, 4th floor. (2) Peter Della Bella, psychiatrist, will discuss medications that can ameliorate behaviors, Tuesday, June 6, 2017, 5:30 – 7:30 pm, Birch Family Services, 104 West 29th Street, 2nd floor training room. Information: Margaret Puddington (212) 799-2042;


Service Coordination: Carol Lincoln reported that there was a presentation on special needs trusts at the April meeting. Work is underway in planning the MSC forum; registration is on target, workshops are interesting and relevant. You can register online at MSC Forum: Friday, May 19, 2017, 9:00 am – 4:00 pm, Pace University, 3 Spruce Street, Upper Level. Information: Carol Lincoln (718) 859-5420 x 225;