Manhattan Family Resource Directory – 12/16

About This Directory

This directory lists services available to individuals with intellectual and developmental disabilities (IDD) and their family members who reside in Manhattan.

Developmental disabilities include:  intellectual disabilities, cerebral palsy, Down syndrome, autism spectrum disorders, and other neurological impairments.

Many of the services listed in this directory require an individual with IDD to have eligibility with the New York State Office for People with Developmental Disabilities (OPWDD). Additionally, some OPWDD family support funded services require that the individual with IDD reside in Manhattan with their family.

To apply for OPWDD eligibility and to access services call OPWDD’s Front Door office in Manhattan at 646-766-3220.

This directory includes services funded by OPWDD and services funded by other entities. Please contact programs directly to inquire about their eligibility requirements.

Inclusion in this Directory does not constitute an endorsement of any program.

Agencies not included in this Directory that would like to list their programs should contact Yesenia Estrella at 212-643-2840 x 349, yestrella@sinergiany.org, or Wendy De Leon at 917-965-2950 x109, wdeleon@ucpnyc.org.

Download: Complete Directory Manhattan Family Support Services Directory 12/16 (80pgs)

 

Below are links to .pdf files to download by category

Acronym Dictionary

Table of Contents

Complete Introduction

Important Manhattan Resources

Adult Day Services/Employment
For a comprehensive listing of Manhattan adult day services and employment programs, Click Here

Advocacy
Advocacy services help individuals with developmental disabilities and their families obtain the rights and privileges to which they are entitled.

Afterschool Programs

Article 16 Clinics
These outpatient clinics provide a variety of medical, diagnostic, and therapeutic services for persons with developmental disabilities and their families.

Article 28 Clinics
These outpatient clinics provide a variety of primary and specialty health care and rehabilitation services for persons with developmental disabilities and their families.

Behavior Management
Behavior management is training for parents and caregivers of persons with developmental disabilities in how to manage difficult behaviors.

Benefit Asssistance
These agencies provide help in obtaining benefits, such as Medicaid or SSI, to which persons with developmental disabilities and their families may be entitled.

Camps
For a comprehensive listing of camps and summer programs for children with special needs, contact INCLUDEnyc, formerly Resources for Children with Special Needs, Mon.-Thurs., 9:00 AM-3:00 PM, at 212-677-4660 (English) or 212-677-4668 (Spanish) or www.includenyc.org

Case Management/Service Coordination
Case managers offer help in choosing and getting appropriate services for persons with developmental disabilities and their families.

Community Habilation
Funded through the Home and Community Based Services (HBCS) Medicaid Waiver, community habilitation is a service provided in the home and/or in the community that assists the individual with DD in developing skills in activities of daily living such as personal grooming, food preparation + social skills.

Crisis Intervention
Crisis intervention is emergency assistance with serious short-term problems, provided by professional staff, to individuals with developmental disabilities and their families.

Evaluations-Psychological-Psychosocial
The following resources can help you get psychological and psychosocial evaluations that are required to establish eligibility for services provided under the Office for People with Developmental Disabilities (OPWDD)

Family Training/Counseling
Family training for family members in communication skills, behavior management, independence skills, and advocacy.

Guardianship Information/Financial Planning/Future Care Planning
When a child with developmental disabilities becomes 18 years old, the parents are no longer the legal guardians. If your child will continue to need supervision and guidance as an adult, you may want to establish a legal guardianship before your child reaches age 18. You may also want information and advice on providing for your child’s future financial needs. The following organizations can help you.

Housing Assistance/Home Modifications for Individuals with Physical Disabilities
Housing assistance is help in finding and getting housing appropriate for persons with developmental disabilities.  Home modification is help in fixing up the home to help people with physical disabilities become more independent

Information + Referral
Information + referral services provide information about programs and services for individuals with developmental disabilities and their families.

Parent:Sibling Support Groups

Recreation Programs

Reimbursement Programs
Reimbursement programs pay for purchases or expenses related to the needs of individuals with developmental disabilities. Families may be reimbursed for the cost of goods or services that are not covered by current programs, entitlements, or insurance. You must apply to an agency and get approval for your purchase.

Religious Programs

Residential Services
While residential services are not technically “family support” services, we wanted families and professionals to have an easily accessible list of residential providers in Manhattan.

Respite Emergency
Emergency respite is temporary care of an individual with developmental disabilities provided on an emergency basis due to a family situation of extreme urgency, such as the hospitalization of a family member. Emergency respite may be provided in the home, at a family care home, or at a respite center.

Respite-in-Home
In-home respite is temporary care of an individual with developmental disabilities, provided in the home by a trained respite worker. Respite is scheduled in advance; sessions vary in length according to respite agency

Respite: Overnight-Extended Stay
Overnight or extended stay respite is temporary care of an individual with developmental disabilities, provided at a respite center or a family care home, by trained respite workers. Respite is scheduled in advance for one night or more, according to the family’s needs and the respite agency’s policies.

Services for Physically Disabled, Medically Fragile, or Chronically Ill

Socialization Opportunities for Individuals with a High Level Of Independence
These programs are for individuals who have developmental disability diagnoses such as Asperger’s Syndrome, Learning Disabilities, and Tourette Syndrome, but don’t necessarily meet OMRDD eligibility due to their level of independence.

Specialty Skills Training
Training programs that teach individuals with DD specific skills to encourage independence, e.g., travel training, toilet training, socialization skills, independent.

Technology Related Programs
Programs that assist an individual to identify, acquire, and learn to use appropriate technology (high or low tech) to improve communication or independence.

Transportation

Waiver Services: The Home and Community Based Services (HCBS) Waiver
HCBS Waiver services are available to children and adults who are eligible for OPWDD services and who have Medicaid.

Bridges to Health medicaid Waiver for Youth in Foster Care
The Bridges 2 Health (B2H) Home and Community-Based Waiver Program provides opportunities for improving the health and well-being of children in foster care. The purpose of B2H is to avoid, delay or prevent medical institutional care and provide enhanced services to children with disabilities. B2H services are provided to the child, family, and caregivers in the foster home or community setting.

 

 Abbreviations:  ID stands for intellectual disability.  DD stands for developmental disability. LD stands for learning disability.  ASD stands for autism spectrum disorder.