In DD Council Minutes, Minutes

Manhattan Developmental Disabilities Council

www.manhattanddcouncil.org

Next Meeting

Tuesday, April 21, 2026

10:00 A.M.

Come and hear updates from providers, OPWDD, and New York City DOHMH

Learn what’s happening as we continue to work to ensure services and supports for people with I/DD!

Hybrid Meeting – Join In Person OR Virtual

In Person:

Join Zoom Meeting:

https://zoom.us/j/97723827673?pwd=CDw2MFQvdvNvaIMgxOWiumRPmPiCBV.1

Meeting ID: 977 2382 7673 / Passcode: 983899

One tap mobile: +19292056099,,97723827673#,,,,*983899#

Manhattan Developmental Disabilities Council Minutes

March 17, 2026

I.          Introductions

The April   minutes are posted on the Council website. If you would like to refer to past minutes, they are always available on the DD Council website: (www.manhattanddcouncil.org).

III.        Announcements

ManhattanDDCouncil@gmail.com. Please send all information and flyers to the email address. All non-fundraiser events can be posted on the website.

We will continue our meetings in person and via Zoom and we appreciate everyone who participates

NY State Institute on Disability

Doris Khan

Family support service provider agency

Family reimbursement available for Manhattan families (camp, goods, services, etc.)

Jackie Tripodi, 929-202-1115, jtripodi@nysidinc.org

Sinergia

Openings for evaluations, case management, family reimbursement, housing advocacy, educational advocacy

Residences in Manhattan

Johana Santana, jsantana@sinergiany.org

YAI

Manhattan Crisis Intervention- We provide support with behavior management, toilet training, counseling and support connecting with other services including OPWDD eligibility. To place a referral, you can reach out to 212-273-6200 or email manhattancrisisintervention@yai.org 

openings in other Manhattan programs: 

Socialization Skills- a socialization program for people ages 9 and up with a diagnosis of autism. There are 10 weekly sessions in the fall and spring. Some of the topics reviewed include friendships, communication, social boundaries, etc.

Parents with Special Needs- PWSN empowers parents with developmental disabilities through direct support and skills training, to become more independent and successful parents. Some of the topics reviewed include parenting and family empowerment, skills training that include infant care, behavior management, safety awareness, time management and other topics.  Parents must have parental rights of the child.  

Independent Living Skills- 18 years+. This program features ongoing weekly group sessions spread across two semesters (10 weeks each). Topics covered include budgeting, nutrition & kitchen safety, decision making, problem solving, community & internet safety, stress management.  

GHO

Services available: Day hab, day hab without walls, prevocational, non-Medicaid case management to assist families seeking OPWDD eligibility, evaluations, CCO referral, family reimbursement, assistance for Chinese & Korean speaking families. As well as CDNY

Contact Pat Liu Chang, 718-307-6563, Pat@ghoinc.org

Lifespire

Openings in Manhattan behavior management & parent training program (virtual or in-person), no wait list

Call Jay Kleinman, 646-338-5632 or email jkleinman@lifespire.org

ADAPT Community Network

ADAPT Community Network offers a wide range of supports including Family Reimbursement, Housing Assistance Services, Doorways to Independence (home modification and repair program), Community Habilitation, Overnight Respite, Day Habilitation, Health Services, Early Childhood and School-Age programs, and more. Please contact Project Connect at 877-827-2666 or fill out “getting started” online form for more information https://adaptcommunitynetwork.org/service-options/getting-started/.

1-877-827-2666 for more info

Ohel Bais Ezra

Family reimbursement funds available Manhattan Brooklyn and Queens

Call 718-686-3451 or email Communityservices@ohelfamily.org

Everett Community Services

Location in Brooklyn, openings in community habilitation & respite, day habilitation without walls (Bronx, available for Bronx & Manhattan residents)

Christopher O’Connor, 718-255-5946 x4056

Care Design NY

Care Coordination Organization (CCO), offering Care Manager services

Accepting new referrals, including those coming from other CCOs with wait lists

Assisting families through OPWDD eligibility, Medicaid enrollment, Medicaid waiver/parental deeming process

Summertime Gallery – an art studio + gallery for artists with and without disabilities pushing towards a more inclusive art world. We currently have two exciting groups we have during the week.

Studio Hours is a virtual group where we use different prompts, materials, and mediums to create art together. This is less of a step by step class but more of an art family/community where artists encourage and support each other.

Our second group is Art Walks + Talks. This hybrid group consists of visiting art museums or galleries in person every other week, and the opposing week we are virtual and create art using inspiration from the week prior. This group is great for those who want to immerse themselves in the NYC art world.

These groups accept Self-Direction and fee-for-service. Please don’t hesitate to reach out to anna@summertimegallery.org or check out our website at Summertimegallery.org

Esperanza -site based day program in Manhattan and the Bronx as well as recreational programs for adults. 212-928-5810

NYLPI – NY Lawyers assistance regarding Higher education (students attending college in NYS only) FACING DISABILITY DISCRIMINATION IN HIGHER EDUCATION? FREE LEGAL ASSISTANCE For Students in New York Navigating Challenges in Higher Education due to a Disability What We Offer: • Advice and Referrals • Accommodation Advocacy • Appeals and Grievances • Representation Getting Started: Contact us to schedule your free consultation and get connected to a Disability Justice Attorney to explore how we may be able to assist. Disability Justice Program New York Lawyers for the Public Interest (212) 244-4664 (voice/relay).

Centre for family support-vacancies in residential in 5 boroughs and family reimbursement

AHRC- AHRC NYC has openings for Free Evaluations for Individuals who do not have Medicaid and are seeking OPWDD eligibility. Contact Marrissa.mcmillan@ahrcnyc.org or the Referral Information Centre at 212-780-4491 or referrals@ahrcnyc.org

AHRC NYC has openings for Family Reimbursement. Contact Casey Barba at 917-715-8035 or AHRC.FamilyReimbursementPrograms@ahrcnyc.org

GoodWill– Day Hab vacancies

Excellent Home Care– Home care particularly focusing on minors to help with therapies and nursing. It is completely to the IEP. Contact us to explore if we can help you.

NYstate institute on disability-reimbursement for good service and camp-Jackie Trapodi-

Manager at Metro Community Health Centres.

            Service we offer: Primary Care, Dental, Psychiatry,  Neurology,  Podiatry,  Gynaecology

            We are in 4 locations: Bronx, Brooklyn, Manhattan, and Staten Island.

            For further information please feel free to contact me or access our website: https://mchcny.org/

Contact Info:

Antony Lucero Patient Experience Manager Metro Community Health Centre

979 Cross Bronx Expressway Bronx, NY 10460 T: 718.665.7565 Direct Dial: (347) 291-8725

Guest presentation-home enabling supports Meghan O’Sullivan

How to support people who want to be more independent

Simply home is a national company

2 goals

  • Support independence in the home and community
  • Need to have less reliance on staff in the home

8 providers in the New York area  authorized to put forth this technology.

This technology starts at the planning during the life plan.

There are simple low tech ideas such a bowls that don’t move or garbage cans that you just have to wave over for it to open. There are a range of low tech ideas. Even the ring doorbell can be utilized as low tech.

Home enabling supports(HES)

Increase, maintain or improve person’s safety in the home

Increase maintain or improve person’s independence in the home

Increase maintain or improve person’s  health outcomes

Increase maintain or improve person’s Participate in the community

Minimize the reliance on or the deferral of paid staff for supervision and/or assistance

HES are for people who are living at home or on their own. It is currently not for residential

New support options

III.    State News – Samrawitt Tadesse

  • RFA for Reginal heath centers. Common themes that they are getting left behind with accessibility. 2m million dollars for Reginal Health clinics. The RFA went live in 2025 and closed in November 2025. Awards should be announces 2026 Spring
  • Home Enabling Supports- address person’s needs to help a person’s abilities and imagination and make meaningful relationships , participate in the community and work in the community.
  • PCCS, Adapt and center for family support have been chosen in region 4. WE are working with ITS to work on the intake. WE are hoping to have tis services available in 2026.
  • OPWDD is nearing it’s end of their partnership with Georgetown university.  The information collected will bae available in Spring of 2026.

IV.  Reyana Mckenzie, DOMHM

V.  IAC Report – Kate Hoy

  • IAC is returning from Lobby days last week There were over 150 meetings with law makers.
  •  

Education and Ei

  • The governor did not put anything into her budget. There are places upstate that do not have any in person providers.
  • More than 42 % of children who receive EI do not Special education Services. The earlier we can access services the more that helps the child.
  • We need lawmakers to make EI a priority. We are currently 48th in the country.
  • Implement the 5% rate increase that was already promised.
  • 8% increase/stabilization dollars to implement a rate study so NY State can even do a study to see how underfunded they are.
  • Administrative stabilization. A moratorium pause on any regulation changes

Education

  • Fund Fade 22. The state needs to amend the education law so that students who turn 22 in the school year can stay in school. This will fund the school districts to keep children in school for the rest of the school year.
  • ETTPP additional 10 million dollars
  • IAC conference March 5th in partnership with Eden 2 and Qsac. Autism and Aging $100 for IAC members and $150 for non members
  • OPWDD has proposed regulations for people who can receive services from an Article 16 clinic. IAC is concerned for individuals who do not have OPWDD eligibility. They are concerned about them getting squeezed out of services. There is comment available until March 1
  • Rally 3/ 10 in the war room
  • 3/14 Rally in the Vally
  • IAC conference June 10 & 11

VI. Committee Reports:

Manhattan FSS Advisory Council: Co-Chairs: Jackie Goldberg and Mary McGuire-Weafer

Manhattan Family Support Services Advisory Council

2/25 Will be our presentation on Dental

March 11, statewide FSS meeting, you can register on the OPWDD website

April 22 Guardianship and future planning. The first meeting will be on Zoom. The next meeting April 29th will be in person. You need to be at the first meeting to come to the second meeting.

March  will be having presentations on camps.  Date TBD

Transition Committee: Co-Chairs: Andrew Harris and Pat Liu Chang

Last week was our 2026 showcase. We had 17 different programs share their information.  The recording is on our website and right here! https://youtu.be/yrpV3EiR5WI

Manhattan Adult Services Showcase

Wednesday, February 11 @ 10am

What’s Next After High School?

Learn about programs & services for adults with intellectual & developmental disabilities living in Manhattan
Learn About: Day Hab Programs .Employment Services, OPWDD Services .Support for the Future, Participating Organizations:

ACANY Advance Care Alliance of NY | ADAPT Community Network | AHRC NYC | Braverhood | Care Design NY | The Center for Family Support | Esperanza Center | Gateway Counseling Center | General Human Outreach in the Community Inc. | Goodwill NYNJ | Job Path | Lifespire | Open the Lid LLC | Pure Vision Arts (The Shield Institute) | Sinergia | Unique Care Community Services | YAI Network

Zoom Info Coming Soon!

If you have any questions please feel free to contact us:

Andrew Harris, P138M, aharris27@schools.nyc.gov

Pat Liu Chang, GHO, pat@ghoinc.org

Family & Provider Information Committee: Co-chairs: Wendy De Leon & Mainawatie Singh

Manhattan Family & Provider Information Committee Meeting
March 11 @ 10:00 am – 11:00 am
Join the Manhattan Family & Provider Information Committee for an open conversation and resource sharing! We connect families, caregivers, and providers to keep everyone informed about services, supports, and advocacy for people with developmental disabilities. Come learn, ask questions, and stay connected with your community.
Unlock resources that can make a real difference! This meeting will spotlight underused services in Manhattan—like Family Reimbursement, guardianship, clinical evaluations, advocacy, and more—from agencies including AHRC, Sinergia, QSAC, and others. Don’t miss this chance to learn how to access these supports and help families and professionals get the tools they need. Register today!

Meeting Link:
https://us06web.zoom.us/meeting/register/V6tMopOpQe-RAY4rhwjG-g

New Business

5 borough Legislative Towne Hall March 6th 2026. People count and the more that come and show legislators we are there helps!

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